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Little Light CHD

February 13 - February 26

Little Light, Inc. is a 501(c)(3) non-profit organization supporting families affected by congenital heart defects (CHD). Little Light was founded in February 2014, seven months after their heart baby Karalyn was born with Hypoplastic Left Heart Syndrome, an intact atrial septum and Turner Syndrome, and then shortly after went to be with the Lord. They started Little Light, not only to keep their daughter's memory alive and to give them an outlet for our grief, but also as an offering of gratitude to the Lord for giving them the blessing to be the parents of this sweet little girl. It is what they call "beauty from the ashes." They have chosen to take their grief and heartache and allow the Lord to use it to impact the heart community, to comfort others the way the Lord and others have comforted them through their journey.
http://www.littlelightchd.org/
  • brooklynn-site

    Artist

    Brooklynn

    6 yrs old

Brooklynn is a 6 year old that was born with Hypoplastic Left Heart Syndrome, ASD, VSD and Interrupted Aortic Arch. Her heart defects required a 3 stage intervention for any chance of survival. She had her 1st open heart surgery at 8 days old and recovery was rough. She had some airway, feeding and swallowing issues but after 10 weeks went home with a trach and feeding tube. Her 2nd open heart surgery was at 6 months old and her 3rd was at age 4. Brooklynn has also had 2 heart caths and countless labs, echoes and ekgs. After her 3rd successful surgery she was able to quit using her feeding tube and in 2016 had both her trach and feeding tube removed! Although she suffers from multiple health issues, frequent hospital admissions and technically only has half a heart she has never allowed that to slow her down or dim her smile. She loves making new friends, singing, dancing and playing with her brothers.


New Artists, New Causes

January 30 - February 12

We have some new artists this campaign! And they have brought brand new friends to the PCA family! Check them out below and learn a little more about our new PCA family members :)

The Chromosome 18 Registry & Research Society is a lay advocacy organization composed primarily of the parents of individuals with a chromosome 18 abnormality. We consist of three separate organizations located in the United States, Australia, and Europe, all with a common mission: To help people with chromosome 18 abnormalities overcome the obstacles they face so they may lead happy, healthy, and productive lives. We are proud to count among our members those who are affected by a chromosome 18 abnormality, extended family members, and professionals. Membership is open to any interested person.

Camp CaPella offers children and adults with disabilities and their families a unique camp experience designed to foster personal growth and exploration. Our goal is to enable our campers to make new friends, become more independent, and try new things. All things are possible at Camp CaPella! Kids at camp get to know other people just like them. It creates a community and a sense of belonging that they can't get anywhere else.

The University of North Carolina TEACCH Autism Program's mission is to create and cultivate the development of exemplary community-based services, training programs, and research to enhance the quality of life for individuals with Autism Spectrum Disorder across the lifespan.

The mission of MADE in Texas Assistance Dogs is to train and place high caliber service dogs of all types to adults and children with disabilities in order to help them gain greater independence. We are committed to providing service dogs to the person in need and remaining a support resource throughout the working life of the team, while also increasing public awareness about the different types of disabilities and service dogs, and how these dogs assist their partners.
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    Artist

    Ryan

    6 yrs old

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    Emyrson

    7 yrs old

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    Artist

    Riley

    12 yrs old

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    Artist

    Reece

    5 yrs old

Ryan is 6 years old and was diagnosed with autism and Sensory Processing Disorder when he was 4. He is an avid Lego builder and incredible artist with an endless imagination and a heart of gold. Ryan is a very sweet boy, who loves all creatures big and small, always going out of his way to make sure that his friends and family are happy. He is very excited about this opportunity to partner with Paper Clouds Apparel to raise funds for MADE In Texas Assistance Dogs and help improve the quality of life for those who have even greater needs than his own.

Emyrson is a kind hearted, loving young boy who is too curious for his own good and questions everything. He has an excellent memory and loves to build models and keep his hands busy. He loves farming with his grandpa and great grandpa, playing with lego's and any type of arts & crafts. Emyrson loves food especially sweets! We always joke that he has a bottomless pit. Emyrson has been diagnosed with Chromosome 18 or otherwise known as 18p-, anxiety & allergies. Looking at him and talking with him, you would never know he has the chromosome 18 deletion. He does not let anything hold him back. He is already talking about attending college and being the best he can be and achieve a degree of some sort. Chromosome 18 has a wide range of medical issues ranging from mild to severe and it all depends on the break or deletion of the chromosome.

Riley is a 12 year old girl diagnosed at the age of 2 with Autistic Disorder. She also has a diagnosis of severe anxiety disorder. Riley was minimally verbal until the age of 5. She has made many gains with the help of early and continuing intervention services. She loves art and draws daily. One of her favorite things to do is swim especially at her favorite summer camp, Camp Capella. She looks forward to attending a week of camp every summer. Riley has a great personality and loves to make people laugh.

Reece is 5 ½ years old and has just started Kindergarten! Reece loves trains, flashlights, batteries, art projects and riding horses.
When Reece was 18 months old, his Pediatrician observed that Reece was not meeting age appropriate milestones and recommended he be evaluated. After receiving Speech Therapy each week over the next year, Reece was evaluated again at 2 ½ years old and officially diagnosed with Autism Spectrum Disorder.
For the next 6 months, Reece continued Speech Therapy, and started Group Developmental Music Therapy. Reece also spent 3 months working with an Autism Specialist from the TEACCH Autism program from The University of North Carolina-Chapel Hill. These weekly sessions, using 'Structured Teaching,' greatly helped prepare Reece for school.
Just after Reece turned 3 he started going to school in a part day Special Ed classroom at a local pubic school. When he turned 3 ½ he started Hippotherapy with his Speech Therapist. During the next year, Reece made great strides in his ability to communicate his wants and needs.
Reece was recently diagnosed with Sensory Processing Disorder. He sees an Occupational Therapist once a week and is making great strides at home with his sensory diet. These sensory activities help Reece get the input he needs to keep his nervous system in control so he can concentrate on things like his artwork!


Chai Lifeline

January 16 - January 29

Chai Lifeline has grown from a small, community-based summer camp program for children with cancer to one of the preeminent international health support networks supporting seriously ill children, their families, and communities.

Chai Lifeline's programs and services meet the unique emotional, social, and financial needs of families living with serious pediatric illness or loss.

From the moment of diagnosis or trauma, Chai Lifeline's professionals and trained, compassionate volunteers step in to help restore equilibrium and bring joy and hope back into lives devastated by medical crises and illness.
http://www.chailifeline.org/
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    Artist

    Simi

Simi Fromen is a writer and poet. When she was a young child, she wrote poetry and stories as an exploration of the arts and to unleash her creativity. Many years later, she picked up the pen again finding healing and her voice through words. Her work has been featured in online magazines. Her love and passion for spilling ink have gained her a devoted online following. Her first book Ascending Voice is now out and available on Amazon in the link below. She is currently working on her next inspirational book and novel.


Tubie Friends

January 02 - January 15

"Tubie Friends a non-profit group that is administered by two mothers whose children have feeding tubes and want to use their experience to make life easier for the thousands of children relying on feeding tubes for their nutrition. Tubie Friend Surgeons (TFS) are volunteers who care for or love tube feeders and donate their time and resources. Many of us are still in the trenches with you, which means that sometimes our kids have surgeries, procedures, tests, or hospital stays that takes our time away from Tubie Friends applications and processing."
http://www.tubiefriends.com/
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    Artist

    Caleb

    11 yrs old

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    Bryna

    11 yrs old

  • ellis-site

    Artist

    Ellis

    6 yrs old

Caleb is an energetic and curious 11 year old boy. He loves the outdoors and all animals. Fishing has become a new hobby, but he is a catch and release kind of guy. He is like other 11 year old kids in so many ways and you wouldn't know about his challenges just by looking at him. He was born early and has struggled with his health since birth. The biggest challenge is he doesn't eat much because it can cause pain. For most of his life, he has relied solely on various kinds of feeding tubes and only recently has begun to eat orally. Caleb is also Autistic and has significant challenges with anxiety. Despite these challenges, he enjoys spending time with his family and just wants everyone to be happy.

Bryna is an eleven year old girl fighting a life threatening illness called Mitochondrial Disease. A disease she watched take her older brother from this earth three years ago, when he was only 9 years old. She is frequently in the hospital and has weekly appointments, infusions, procedures and experimental treatments to slow down and fight the disease that has very poor long term statistics. Despite all that she endures, she fights valiantly and is rarely seen without a big smile on her face. In fact, if she is not in her wheelchair people often don't notice her constant backpack or medical attachments. But if takes a lot to keep her looking so good! She has a triple central line that goes into few heart giving her IV nutrition and medication because her GI system doesn't work. She has a double feeding tube that goes to her stomach and intestine that is only used for medication. Her colon has been removed and she has a permanent iliostomy bag, as well as a mitrofanoff which is an opening in her belly button to allow us to catheterize her bladder. All these devices are also matching on her Tubie Friend, which goes with her to all her medical appointment and hospitalizations including into the OR! This has been the best comfort for her as it allows her to never feel alone or different as she always has someone just like her right next to her. Her brother also had a matching Tubie Friend and it continues to bring our family comfort now that Brayden is no longer with us.

Ellis was born with a very large lymphatic malformation on her face and neck, which affected her abilities to breathe and swallow. She had to have fetal surgery before being delivered, and the mass was removed when she was 6 days old. After three and a half months in the NICU, she came home with a trach, a g-tube, and an uncertain future. In her short 6 years, Ellis has had more surgeries and procedures than we can count and intensive physical, occupational, and speech therapies. Her trach was removed in late 2015 and her g-tube was removed a bit before that. Although some therapies continue and more surgery is possible in the future, we are happy to say today she is a happy, smart, and talented little girl. Ellis is in first grade now, and she loves to draw and paint, read books and write her own, build with Legos, and help her mama cook.


22q Family Foundation

December 19 - January 01

22q Family Foundation is dedicated to raising awareness for 22q11.2 Deletion Syndrome while connecting, support, and offering accurate information to families affected by the disorder.
"Prior to the creation of our organization, we, like many of you, received support, guidance and a sense of togetherness from Dempster Family Foundation. Their ideals of creating a community of those with shared experiences and raising awareness to better the lives of everyone affected by the disorder are something that we intend to continue as we grow. We are going to maintain and build upon many of the programs that many of us within the 22q community have come to rely on such as the 22q Education Station, the 22q Mystery Tour, and more. Our bridge to the future is that we intend to create new ways to connect members of our community, as well as work to make sure 22q11.2 Deletion Syndrome becomes a household name. It was important to us to keep the word "Family" in the name of the organization because we hope to become a part of yours'. This is your organization. Therefore, we welcome feedback, input and ideas so that we can be the most effective for the 22q Family. We appreciate the opportunity to serve you all and to help take the mystery out of 22q!"
http://22qfamilyfoundation.org/
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    NooDy

    7 yrs old

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    Artist

    Tommy

    5 yrs old

Mason more commonly known as NooDy was born premature. He is 7 years old and has 22q, apraxia, cerebral palsy and several other diagnoses.  NooDy does not let that define him.   The fact that he can't talk doesn't stop him from making new friends where ever he goes. NooDy has a genuine love (obsession) for baseball and in particular the Tennessee Smokies (Chicago Cubs double A affiliate)  He wants nothing more than to be a part of a baseball team and the Smokies have taken him under their wings and made him an honorary member of their bullpen. Cub will be on this campaign and is the very first recognizable drawing he has ever created  :)

Tommy is five years old and he is much like any five year old. He loves cars, trucks, trains and planes and he loves to play outside. Although he is much like any five-year-old boy, he is also very different. He was born with 22q11.2DS – 22q for short. 22q is a partial deletion of the 22 chromosome and it affects every carrier differently with a wide range of symptoms.
In Tommy’s case, he was affected with a heart defect, a cleft lip & palate, a laryngeal web as well as low muscle tone and developmental delays. He has been tube fed the majority of his life and he’s slowly learning how to eat on his own. Because of his many challenges, he has a very busy schedule. He has been receiving therapies multiple times a week since birth and he has had five surgeries to date. He currently goes to developmental preschool every weekday. In addition, he receives 3-4 therapies a week at home after school. He is very busy, but he continues to work hard like the superhero he is.
Although he has so much on his plate, Tommy is one of the happiest and easiest going kids I have ever met. He loves the movie Wall-E and his favorite past time is playing with his planes. He loves to snuggle and his best friend is his four-year-old sister, Rosemary. Tommy has a special way of making people in his life happy and he is truly an inspiration to everyone he meets.


Gigi’s Playhouse National

December 05 - December 18

Gigi’s playhouse is the only worldwide network of down syndrome achievement centers. They are changing lives through free, results-driven programs for individuals of all ages, their families, and communities. In helping individuals with down syndrome achieve their best of all, we also advance our larger vision of global acceptance for people of all abilities.
Serving children and adults of all ages, each playhouse provides educational and therapeutic programs at no charge to families and in a format that individuals with down syndrome learn best. All programs aim to maximize self-confidence and empower individuals to achieve their greatest potential. Gigi’s playhouse is a 501(c)(3) tax-exempt charitable organization.
http://gigisplayhouse.org/
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    Artist

    Luke

    3 yrs old

  • joel-site

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    Joel

    37 yrs old

  • logo-art-site

    Artist

    Gigi’s Playhouse

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    Trinity

    24 yrs old

"Luke is a sweet little guy who is strong-willed and determined, loves to be silly and has a smile that can light up a room. There are a lot of things that don't come as easily for Luke as they do for a typical three year old. He has Down syndrome and quite a few medical issues that come along with it. This frog is his first ever hand-print art! That probably doesn't sound like too big of a deal, but Luke has a lot of sensory issues and has never liked the feel of paint on him. It has taken lots of exposure and therapy to get him to the point where he actually enjoyed doing this. He made it at GiGi's Playhouse, a Down syndrome achievement center where our whole family plays, learns and connects with other families in the same situation. Luke having down syndrome has opened our lives up to amazing new people, appreciation for the little things in life and a love that is bigger than we ever imagined."

Joel is a people person with a warm and giving heart. He loves working at GiGi’s Studio because he gets to meet new people and help them find the perfect art pieces. He graduated from GiGi U in the spring of 2015, and he has landed two jobs since then!

"My favorite part of the Playhouse is the self esteem that the kids gain. As one Board member states, “My son has gained so much self confidence from being at GiGi’s. At the Playhouse, he is the leader – the other kids follow him! He is beginning to transfer this new found self confidence to his class at school.” There are over 20 different educational activities and programs designed specifically to work on important skills for each child. Many of the programs are facilitated and developed by therapists and educators. Thus the kids are strengthening their gross and fine motor skills, speech and language development, and social skills – and having so much fun they don’t even realize it! All of the skills are built in a way that they can be transferred into the classrooms. They learn how to socialize with peers, how to read and write, how to take turns and most of all they are gaining self esteem at the same time!"

Trinity is a true artist who loves creating new pieces for GiGi’s Studio at GiGi’s Playhouse. She is very proud when customers purchase her pieces. Trinity graduated from GiGi U in the spring of 2015, and she hasn’t stopped dreaming or achieving since. Trinity has strengthened her money management skills and is working toward a promotion at her dream job.


Throwback For the Holidays

November 21 - December 04

Logan & The Crumb Diaries

The Crumb Diaries began as a blog from a mom reaching out to the world for a little support and understanding. Since then they have grown to so much more - Loganisms, Love & SLOMBIES! We always try to keep you updated with Logan & Allyson's journey along their "goat path." If these wonderful people are new to you, we highly suggest catching up on their antics as well as their perseverance.


The Ronan Thompson Foundation

The Ronan Thompson Foundation is a non-profit 501(c)3 organization dedicated to finding a cure for neuroblastoma, a form of childhood cancer. We are currently fundraising to create a world-class neuroblastoma research and care center dedicated to funding both traditional and non-traditional treatments to reduce the number of children affected by this disease and increase survival rates.


Madison Ice Inc's Adaptive Skating Program

Madison Ice Inc's Adaptive Skating Program helps adults and children with special needs to skate as well as play hockey.


Cloud Covered Streets

We'd like to introduce our goal for Cloud Covered Streets - a mobile shower with laundry! As we have been meeting more and more of the homeless, we want to be able to do more for each of them. They have told us how difficult it can be to shower regularly. We want to expand further than clean shirts and toiletry kits into helping the homeless we encounter to feel normal again. No one is born homeless and we believe that providing a mobile shower facility with a washer and dryer will help every person we encounter to feel a little more hope inside. Please help us reach this goal of $50,000 so that we can make this dream a reality!

As a 501(c)3, Cloud Covered Streets is focused on helping the homeless survive the streets on a one-on-one basis. Every time you support CCS, they hand deliver a fresh shirt, socks, & a toiletry kit to someone who is in need. The company was founded by Robert Thornton in Phoenix, AZ but has started to expand to Austin, TX as well as San Diego, CA. With goals to stretch countrywide, Cloud Covered Streets needs help from people like you every day!


Massachusettes Advocates for Children

Massachusetts Advocates for Children is an independent and effective voice for children who face significant barriers to equal educational and life opportunities, particularly those who have disabilities, are low income and/or are racially, culturally, or linguistically diverse. MAC works to overcome these barriers by changing conditions for many children while also helping one child at a time.

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    Logan

    21 yrs old

  • maya

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    Maya

  • Julia

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    Julia

    13 yrs old

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    Artist

    Brooke

    13 yrs old

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    Artist

    Bronson

    10 yrs old

Logan is a recent high school graduate and a minority owner of Paper Clouds Apparel. We met Logan virtually when he contributed art for a campaign and have enjoyed every moment of working with him and his incredible family! Logan's mom, Allyson, chronicles their lives on her Facebook page, The Crumb Diaries. Logan has a fantastic sense of humor, optimism that is unbreakable, and love for all of the people (and many animals) in his life.    

Maya is Ronan's mother and she contributed two incredible quotes that remind her of her son. She was generous to share the story behind each of these special sayings with us. All good things are wild and free is my favorite quote by Henry David Thoreau. It stands for everything that Ronan was in his short little life and it is something I try to carry on for him in my life here. I try to live as wild and freely as possible knowing that tomorrow is never guaranteed. Everyday we are here is a gift and should not be wasted. "You keep me safe, I'll keep you wild" is another one of my favorite quotes. In my heart, I'm keeping Ronan safe forever. In turn, he is reminding me to keep going, to keep knocking down doors, and to keep fighting cancer for kids the non conventional wild way that he would want me to.

Julia is 13 years old and lives in Madison, Wisconsin. She was born in China and joined her family when she was 5 and a half. Julia had a hard life in China and when she came home she received diagnoses of PDD-NOS, ADHD and Reactive Attachment Disorder. School work is challenging for Julia and she works very hard with her wonderful teachers. Julia started drawing just before her seventh birthday. She loves to draw, paint, color and work with clay. She also loves dinosaurs, everything about Harry Potter and playing the cello. Julia is excited to be working with Paper Cloud to help raise money for Madison Ice Inc's Adaptive Skating Program and to see her dancing dinosaurs on shirts and hats!

Brooke is a twelve year old middle schooler. She is generous, affectionate, funny as all get out, and, as you can see, a talented and prolific artist. She was diagnosed with classic autism at the age of three and, while she struggles with certain aspects of the disorder, she takes pride in being autistic and sees her autism as an integral part of what makes her the incredible kid that she is.

Bronson created the "Dino Chase" design Bronson is 10 years old, he was diagnosed with Autism when he was just 2.  A strategy that worked well was to draw him a list of what was going to happen.  He took our simple stick pictures are turned them into a way to communicate to us. Bronson loves Disneyland’s Haunted Mansion and Tower of Terror, and all roller coasters! If he’s not riding the roller coaster, he is drawing or building them.  Baron is Bronson’s big brother and he is the best big brother around, Bronson really started drawing a lot when he changed schools to attend an Autism ABA Class, he drew a picture of Baron to bring to school with him everyday.  Bronson is very active he loves to go camping, ride his quad, play in the ocean and ride the wave runners.


LifeStriders & Trilogy Phoenix

November 07 - November 20

We have a delightful duo between LifeStriders & Trilogy Phoenix. You may remember LifeStriders is brand new to the PCA family! So let's lead off with introducing them first :)

Trilogy Phoenix

Trilogy Inc. shall provide exemplary care and service to clients, family, and community by showing unconditional love, kindness, and respect. Emphasizing the client's overall happiness, we will encourage and support self-development to their highest potential.



LifeStriders

Healing comes in many ways. LifeStriders is a non-profit organization that provides life-enhancing, physical and psychological experiences and services, to individuals with special needs. Through Equine-Assisted Therapy, children and adults can experience the beneficial physical and mental benefits achieved through the human-horse connection.

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    Artist

    Tyler

    11 yrs old

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    Artist

    Trilogy Phx

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    Artist

    Morgan

    8 yrs old

Tyler is eleven and lives in Delafield, WI, with his two brothers, golden retriever (Rex), eight chickens, and his parents. He attends Cushing Elementary in the fifth grade, where he is enjoying being in the highest grade there this year. He has autism which limits his social interaction and speech but with therapy and patient friends, family, and teachers he is making great strides. We are lucky to only live about ten minutes from Lifestriders, where he participates in group therapeutic riding and Occupational therapy.
He likes swimming, going tubing, and taking his dog for long walks. He is very loving and talks about friends and family nonstop. He is a movie lover and enjoys everything about them from the popcorn to the movie snacks, previews, FBI warnings…he even likes to make his own movies! In addition, he enjoys traveling and road trips. He is very playful and loves to be chased, tickled, and wrestled.
His brothers describe him as awesome and brilliant because of his photographic memory. He likes to copy down things he sees often using great handwriting and excellent spelling. His parents say he is persistent and particular. Popcorn, pancakes, pizza, potato chips…just so happens all of his favorite foods end in P and he likes to have them daily.

This art was created by a person with special needs at the Trilogy Phoenix.

Morgan is a loving, empathetic, and silly 8-year-old second grader with a big heart and a sparkling personality that can make your heart fill when you spend time with her. She loves pigs, her brother, Gavin, yoga, and anything chocolate! She is also extremely creative and can often find her for hours drawing characters, writing stories or creating videos with her figurines. Morgan is diagnosed with classic autism and although she has struggles in navigating this crazy world of ours at certain times, she is showing us all how to live happily and authentically in the moment. Morgan looks forward to going to Lifestriders every week and has been going since she was 4 years old. She gains strength, has a bond with the horses (especially Champion!), and smiles and laughs while she works hard with her OT, Elisa, and her team of side walkers. She absolutely loves it there and giving Champion a treat at the end of each session. Morgan's shirt, Happy Joy Day, was inspired by a sunny morning. She drew it before breakfast and declared, "today is Happy Joy Day!". It's as simple as that. This story is her to a T. She takes off before we have time to think about it. She continues to amaze us every day.:)


Friends Forever

October 17 - November 06

  • sean-site

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    Sean

    16 yrs old

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    Liv Blu

    6 yrs old

  • corinne-site

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    Corinne

    23 yrs old

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    Artist

    Elizabeth

    3 yrs old

Sean is a 16 year old who simply loves Special Olympics, WWE, and yugioh. Sean has been part of Special Olympics since he was 10. He competes in soccer and swimming. This past summer Sean competed in the 200 meter freestyle!!!! Only two years before he was competing in the 25 meter walk!!! "It makes me happy and they love me!" Says Sean when asking about why he does it.
Sean has dealt with ongoing physical pain from multiple dislocations and herniated disks and various short and long term memory loss but he is able to work through it and be successful not only at the sport he is doing but socially as well. The coaches at his program are not only coaches but his mentors and true inspiration! They have helped Sean achieve so much and helped his self esteem tremendously. Each and every medal has been earned. ..... Sean is so excited to help them out by doing this!!!

Lil Liv Blu is 6 years old and lives in San Diego with her mom, her DaddyMax and big bro Jet, oh and two rescue dogs, Peekay and Ringo and fat cat Raphie (19lbs). Liv has had a two pound tumor removed Aug 2 along with her left kidney, and started chemo three weeks later. We have spent a total of 15 days in the hospital.
She loves to draw and paint and color and create! Her little brain works amazingly well and she is in a 1st/2nd grade combo class at La Jolla Elementary. She is very social and outgoing and a natural leader. She loves music and animals and helping others. (Liv's mom used to run an animal rescue and volunteer at the homeless shelter so Liv's grown up helping others) She has the BIGGEST heart!!! She wants to help everyone and constantly bring her toys to others to make them feel good.
Smart, brave, independent. - three words her bro used to describe her. kind, hilarious, feisty and sassy- words from Mom Sweet, brave and funny-words from DaddyMax

Corinne is a 23 year old with Autism Spectrum Disorder who thrives everyday to make others happy. Corinne attends Johnson County Community College in Overland Park, KS, she enjoys working out, creating events for all her friends with autism. She is a part of the Autism Club at the college and helped create the Alpha SisterHood Sorority a program for ladies with autism through the Autism Society the Heartland. Corinne loves to draw and is working towards creating her own company that will create children books, motivational posters and cards. She loves to create her animal friends and share them with others! Corinne feels that each of us have our own skills to be successful and you should do what makes you happy!

Elizabeth is a smiling, happy, beautiful 3 year old princess with a complex set of medical and special needs. Her main diagnoses are: Congenital Myasthenic Syndrome (a rare neuromuscular disease) and another rare genetic disorder that is newly discovered, causes multi-system issues and is known currently as "De Nuovo SON mutation." She has over 35 other medical diagnoses, which span over multiple body systems. She has developmental delays, and various forms of congenital brain damage. She also has Cortical Visual Impairment, and she attends the Western PA school for Blind Children in Pittsburgh, PA.
Elizabeth loves spending time with her mommy, daddy and especially her big brother, Celtan. They love to play, color and cuddle together. Elizabeth loves all things pink and all things princess, and she enjoys playing with dolls. She also loves all things Disney and music. In fact, she is non-verbal, but she hums Mozart and various other songs.
Elizabeth is a miracle, has been beating odds since before she was born, and she continues to beat the odds to this day. She is brave, and fierce, and as sweet as she is strong. She spends a lot of time at Children's Hospital of Pittsburgh, and she has a Facebook Page: Team Elizabeth Jeanne. Elizabeth's mom also writes a blog about her, which can be found at www.teamelizabethjeanne.blogspot.com


AAsher’s 12 Days

October 03 - October 16

When AAsher's 3rd birthday was coming up (12-12-12), we decided to do something extra special since it fell on such a cool date and that's where it all began.........We thought about a special party or something surrounding the number 12 and that grew into 12 days of gifts!! Since he was going to be turning "3", we decided that we would give 3 gifts per day for 12 days leading up to his actual birthday! Birthday gifts for others!!! What I didn't realize when we decided to embark on this journey was the overwhelming joy that not only the recipients would experience, but the joy that EVERYONE experienced!!! This tiny little boy with so many odds against him was changing people, one heart and mind at a time! It didn't start off as a way to raise awareness for Down syndrome, but it just happened!! I truly believe that it was MEANT to happen this way. 12-12-12 (21-21-21 in triplicate backwards.......3 copies of the 21st chromosome....... what do you think?) Since then, we have continued to do extra special things for others during AAsher's birthday month. He's given gifts to the homeless, veterans, the elderly, orphans, the police and we have even given the gift of hair to make wigs for women with Cancer. AAsher grows his hair all year so that he can donate 9" each time for wigs! He truly has the most loving heart for others and such an amazing gift of compassion.
Last year we decided to adopt 12 angels from a group home that houses adults with all different special needs (special abilities we like to call it). AAsher was able to raise enough money to give each of the 12 angels $50 worth of gifts each from their Christmas lists!! We would love to be able to do that again this year with your help by purchasing AAsher's designs!!!
Our goal for the future is to complete our 501C paperwork and turn AAsher's 12 days of birthday gifts into a year round, 12 month of giving organization. Sortof like a make a wish organization. Your purchase of AAsher's designs will help us to keep the gift giving going! Best birthday present ever is to give to others! I hope that you will join us!
https://www.facebook.com/KerriLilesphotography/
  • aasher-site

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    AAsher

    6 yrs old

AAsher is 6 years old and he sports an extra 21st chromosome, which we like to call the "love" chromosome. The doctors call it Down syndrome. AAsher also has apraxia of speech, which makes him non-verbal (but we are working very hard in therapy to help him beat that diagnosis). He uses sign language and a speech device to communicate right now.