As a toddler, Rose McPherson was diagnosed with a rare genetic disease with no name, and no cure. To her father, Casey, it felt like a death sentence… until he spoke to hundreds of biotechs, foundations, and researchers. Casey learned:
We DO have the tools to cure Rose’s disease (HNRNPH2), and many others.
We DON’T have the business models, pipelines, and financial support in place to do it.
To Cure A Rose Foundation was born to solve this problem for Rose and the 200m children that suffer from rare diseases. At the moment, 95% of them don’t have any cures. This is an urgent health crisis for these forgotten children, and we aim to help fix it.
We start by saving Rose.